Arizona parents turn donated van into charity fighting inherited blindness

 After their son Luke was diagnosed with Bardet-Biedl syndrome, an Arizona couple established A Race Against Blindness. The charity has since raised over $6.1 million for research into inherited retinal diseases. They also organized a sweepstakes featuring a custom adventure van, significantly increasing awareness. Their contributions support groundbreaking gene therapy aimed at BBS1, and funding has expanded to multiple inherited retinal condition studies. After their son Luke was diagnosed with Bardet-Biedl syndrome, an Arizona couple established A Race Against Blindness. The charity has since raised over $6.1 million for research into inherited retinal diseases. They also organized a sweepstakes featuring a custom adventure van, significantly increasing awareness. Their contributions support groundbreaking gene therapy aimed at BBS1, and funding has expanded to multiple inherited retinal condition studies.